Wow, I thought I'd posted more recently than October, but apparently not, or at least I can't find it. So please forgive me if some of this is repetitious. And if you have no idea what I'm talking about, you can catch up here.
Turns out I'd probably had a low-grade infection deep in the surgical bed from the very beginning, which is most of why the wound never healed, and in November, it suddenly got really bad. When oral antibiotics didn't help, they put me in the hospital for a week and started me on what turned into three months of IV antibiotics. Meanwhile, in February, the plastic surgeon and neurosurgeon went back in and did a major "wound revision."
All that finally did the trick!
I came off the antibiotics and home health care in March and was discharged by the plastic surgeon in April. I just had another set of scans done this week, and there's been no recurrence. In other words, two years (two months and two weeks, but who's counting? 
) after the original surgery, I'm still cancer-free.
Next week, I'll be starting physical therapy to strengthen my back. And I've already started looking very some very-part-time work, either paid or volunteer. I'm actually starting not to feel like a professional patient.
Anyone interested in helping me celebrate in a very concrete way, please PM me, and I'll give you a link to my fundraising page at the Chordoma Foundation. (A public "thank you" to the couple of folks who've already donated. You know who you are.)
Turns out I'd probably had a low-grade infection deep in the surgical bed from the very beginning, which is most of why the wound never healed, and in November, it suddenly got really bad. When oral antibiotics didn't help, they put me in the hospital for a week and started me on what turned into three months of IV antibiotics. Meanwhile, in February, the plastic surgeon and neurosurgeon went back in and did a major "wound revision."
All that finally did the trick!
I came off the antibiotics and home health care in March and was discharged by the plastic surgeon in April. I just had another set of scans done this week, and there's been no recurrence. In other words, two years (two months and two weeks, but who's counting? ) after the original surgery, I'm still cancer-free. Next week, I'll be starting physical therapy to strengthen my back. And I've already started looking very some very-part-time work, either paid or volunteer. I'm actually starting not to feel like a professional patient.
Anyone interested in helping me celebrate in a very concrete way, please PM me, and I'll give you a link to my fundraising page at the Chordoma Foundation. (A public "thank you" to the couple of folks who've already donated. You know who you are.)
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